Originally posted by MontanaRabbit
View Post
-
Re: Vandrovec Family
Synagis is a medication designed to protect infants from developing RSV when a close contact is known to have it (assuming the Kailey had RSV). Ephedrine is a stimulant similar to amphetamine that is used by injection to increase blood pressure and heart rate usually in patients receiving anesthesia. It is also used very rarely to treat severe asthma in children and adults (very rarely). I don't recall the brand name and it is possible that it is similar to Synagis (something like synephrin). The baby should be okay, will be observed for fast heart beat or high blood pressure. Short acting medication so they should be home soon. -
Re: Vandrovec Family
When it rains it pours I guess.
Terry took one of their twins in for a Synagis shot and the nurse accidently gave him ephedrine. Terry and Ty are in an ambulance on their way to Sanford for observation.
Unreal.Leave a comment:
-
Re: Vandrovec Family
Kailey had a great night. She stayed on nasal cannula all night and only dipped to 91% once. Yeah! Today she's down to one half liter. We had her off oxygen all together for a little bit today and she dropped her sats to the 87-90% range. It's hard to know for sure but that could be her norm. We will work with the Sanford docs to decide if she will need oxygen at home. One thing we know for sure, we need to keep her asthma and reactive airway under control. She will have nebs and vest treatments multiple times a day at home along with other meds. Our ambulance is picking us up at 9:00 tomorrow....any ideas on how to keep a two year old happy while strapped down in the back of an ambulance for over four hours??? That should be interesting! We should arrive at the Sanford PICU in the early afternoon but I'm guessing they will not keep us in the PICU, she's too healthy for the PICU!! :-) We went on a wagon ride today and Kailey even walked in the halls, she needs to hold on to both of my hands when she walks because she is so weak but she was loving her walk! She's won the hearts of many here and they are truly glad she is going back home. We got moved to a different room late last night because they needed space in the more critical part of the PICU. She was a wild animal last night, which is why we probably got kicked out of our room. At one point the nurse just unhooked her from all the monitors because she was jumping and laughing and making silly sounds. She just kept pulling all her cords off and laughing. It was a moment that I knew I should have tried to keep her calm and tell her no, but I didn't. I loved EVERY MINUTE of her big smiles and hoarse laugh. Her sillyness and giggles and that spark in her big blue eyes. She got me laughing so hard that my tummy muscles hurt so bad and I almost dropped her off the side of the bed! It was two weeks ago today that I wasn't sure if I would ever hear her talk or see her open her eyes again. Well, it's nap time here....thanks for checking in! I will update later today.Leave a comment:
-
Re: Vandrovec Family
EXCELLENT NEWS!
If all goes well we will head back to Sioux Falls on Friday. We are going back to Sanford, not straight home, but at least we will all be in the same town! Kailey had a great night, weaned down to 2 liters flow and still in 60% oxygen. Right now the liters is a bigger deal to me than how much oxygen she is in because if we take her home on oxygen she will be getting 100% oxygen at a smaller liter flow, under one liter. She is handling her methadone and Ativan wean well but she is still so weak. When I hold her I can feel her spine, she lost so much weight and muscle. I've been doing therapy with her here but she has a long way to go to get back to where she was before this all happened. Her X-ray looked great today, there wasn't any blood work taken, we were even downgraded to intermediate care from critical care. Things are looking and feeling good. We need to continue on this path, pray for no set backs. I'm so looking forward to Friday!Leave a comment:
-
Re: Vandrovec Family
Now thats good news! Hope the xray tomorrow morning shows improvement.
As I posted in the other thread our donation is in route to Terry in Sioux Falls. If he has not checked on here Im thinking he will be shocked with the amount.Leave a comment:
-
Re: Vandrovec Family
Around 3:00 this afternoon Kailey started to show some big improvements. She was weaned down from 7 liters flow to 4 liters and is in 60% oxygen right now. She's satting high and coughing pretty good too. I'm looking forward to the X-ray in the morning. It has to be better than today. This morning she was still retracting quite a bit when breathing but not tonight. I'm really excited about this. She was playing catch and peek a boo with the RT tonight and starting to show her silly side a bit. She's been asking for food and water which is another good sign, she can't have them yet so it's been hard telling her no when I want to give in. I really hope we keep moving forward from here. She's set to not be interrupted all night again so another good night of sleep is going to great. If tonight goes well I am pretty sure there will be talk about getting back to gtube feedings and maybe taking out her NJ feeding tube. Kailey is on my lap and wants to type a big thank you to everyone for praying for her. mmmnoooimqs wiwqja Siam,b an. D ::.////s¥hhbbvdgr m O 999@ I will update tomorrow after rounds.Leave a comment:
-
Re: Vandrovec Family
I'm still praying,but feel much better about the chances for a full recovery for Kailey.Originally posted by MontanaRabbit View PostLeave a comment:
-
Re: Vandrovec Family
Kailey is not exactly out of the woods yet. She is still a very sick kid and they have no idea how long she will be in MSP.Originally posted by jackdaniel View PostLeave a comment:
-
Re: Vandrovec Family
Terry's back,well maybe tommorrow,Kailey's going to be all right....wooohooo!
Now i can really enjoy the Summit Leaugue Tournament,with that potential tradgedy averted and left behind. From Terry ,Link: http://terryvandrovec.tumblr.com/Leave a comment:
-
Re: Vandrovec Family
Kailey had a pretty good night. Terry stayed with her because he isn't going to get to see her for awhile now. He and Mya headed back to Sioux Falls early this morning. Kailey slept for a good six hours and has taken two good naps today. Her X-ray hasn't changed, her right lower lobe is still really hazy but she is coughing more. we need her to do a better job at it though. She tolerates her vest treatments so I hope they continue to work. They also added a hyper tonic saline neb which should help her cough. She is more perky today but gets tired fast. She was asking me to wash her hair today, how cute! I realized its been just about two weeks since her hair has been washed. She had a sponge bath and they took out her central line. The only tube left to take out is her NJ feeding tube, but there isn't any talk of that yet. She is getting full volume feeds now which should help her feel better too. Her oxygen needs are the same, anywhere from 30-100% and needing 7liters, satting in the mid to upper 90's and desats sometimes when she is being messed with or has to cough. I hope for another good night for her with lots of rest and for that xray to look better tomorrow. Although, I wonder how bad her lungs look on a good day. I'm trying not to focus on all the numbers and X-rays. She looks good and I will take that. This week is going to be so hard. I haven't held, fed, carried, touched my babies since Feb 14. Since I've been gone so much has happened. They are sleeping longer, eating more, making noises, smiling, laughing and even grew too big for their newborn clothes and newborn diapers. I'm really sad that I missed out on that. For me, those little things mean so much. I don't take anything for granted. I'm just glad the people who were there to see this happen were family and loved up those babies the entire time. I hate not knowing what the plan is for Kailey or when we will be home again. I'm trying hard not to get discouraged but I have my moments. Last night I was pretty down. I think knowing today was the day I would be alone up here and not know when I would see my other kids or husband again was terrifying. I hate the situation we are in. As easy as it would be to focus on all the bad that is happening right now, I refuse to do it. God has given us so many wonderful and generous people to help us through this: family, friends, strangers, doctors, and nurses. God has blessed us and reminded us that He is always there, His plan is in place for each of us. The plan might not be what we want but He challenges us to trust in Him. I want to focus on all the good things God has given us. "Let all that I am praise the LORD; may I never forget the good things he does for me." - Psalm 103:2 Thanks for checking in and please remember to keep Maddox's family in your prayers.Leave a comment:
-
Re: Vandrovec Family
Written 1 hour agoPardon the brevity tonight ... Last night in MSP for Mya and I. Wish we could stay to see this through but school, work and the twins need us. Another huge thanks to all the friends and family that welcomed us here. You are amazing. We really felt loved. Jess and Kai will stay here as long as necessary. Hard to say how long that will be. Kai had a ... decent day. Napped, bounced in and out of play mode and got a lot of RT. We'll find out with the morning x-ray if it helped or not. Could be a long process, but we certainly hope not. It's going to be difficult to be split up again. Feel especially bad for Mama Bear - it kills her to be away from the cubs. More soon. Thanks for caring.Leave a comment:
-
Re: Vandrovec Family
Here we go again
Written 1 hour ago
Kailey's X-ray was a lot worse than yesterday. Even though her blood gasses and oxygen requirements are good, she is not getting the junk out of her lungs like she needs to. The doctor even said " we need her to cough. We don't want that tube back.". My heart sank. Of course we don't want that but it's a possibility if she doesnt respond to the new neb treatments and start coughing. If xrays get worse we will have to have her intubated again. The neb treatments are now a vest they wrap around her and shake her. The hope is to get the junk loosened up so she can cough it out. But try to get a two year old with a sore throat to cough on demand. It's nearly impossible. My prayers are for rest and continued progress but also for coughing like I've never seen from a two year old.
Kailey finally fell asleep....little stinker!Leave a comment:
-
Re: Vandrovec Family
Not at all! I'm glad other people are updating - I'm online waiting to buy concert tickets. I read the update but didn't post yet so I'm really glad you did! And thankful that Kailey is continuing to improve!Leave a comment:
-
Re: Vandrovec Family
Don't mean to step on SkippyJacks toes....but The tube is out.
Written 1 minute ago
The tube is out. That went as planned. But her o2 sat isn't great because she is reluctant to cough. It may take a couple hours for her to acclimate. She is a little agitated, saying a few words and asking for a balloon. Dad has his next task ...Leave a comment:
Leave a comment: