Vandrovec Family

[jacks1]

Re: Vandrovec Family

Unbelievable....they absolutely can't catch a break.

[SkippyJack]

Re: Vandrovec Family

The (new) Vandrovec twins are ill- Taylor, the girl twin has the nasty virus that sent Kailey to the ICU for a month last winter. This is the latest Caring Bridge post- posted by a friend because Terry and Jess have their hands full: Notifications

Taylor's Turn

12 minutes ago

I really didn't want to have an excuse to hack back into Kailey's CaringBridge site, ever again, but when I heard the news, I wanted to reach out to all of Team Vandrovec's supporters.

The pendulum has swung, yet again. Taylor didn't look quite right to Jess yesterday after arriving home from the hospital with Ty. During the night, Taylor spiked a scary, high fever of 105.1, and it was only coming down to about 101 with fever-reducers. Tonight, she was diagnosed with human metapneumovirus (hMPV). Frankly, that's not a virus that regular people should even know how to spell, but this family does. Why? Because this is the same virus which Kailey had last winter which caused her to be put on life support and flown to Children's Hospital in Minneapolis. Taylor needs our prayers to get through, and Kailey needs our prayers to absolutely avoid contracting this nasty virus.

Thank you to those who have continued to check in on Team Vandrovec
-Lindsey - See more at: http://www.youcaring.com/medical-fun....17vcT26m.dpuf

Trying to remember these words: "Rejoice in hope, be patient in tribulation and be constant in prayer." --Romans 12:12



Sent from my iPhone using Tapatalk

[SkippyJack]

Re: Vandrovec Family

Most recent Caring Bridge post for Kailey Vandrovec :
Prayers are working!

12 hours ago
Psalm 107:28-30 Then they cried to the LORD in their trouble, and he delivered them from their distress. He made the storm be still, and the waves of the sea were hushed. Then they were glad that the waters were quiet, and he brought them to their desired haven

Your prayers are working! We can't thank you all enough for praying and getting family and friends to pray for Kailey too. Kailey settled down wonderfully, her coughing stopped and she rested. Her numbers were awesome all night. Heart rate was in the normal range for the first time in days. As low as 70's when she was sleeping. Respirations were in the 20's and her 02 was weaned from 100% to 40%. She likes the CPAP machine because it helps her breathe so much easier. She was really struggling before and I'm sure she was close to tuckering out. Thank God we got here when we did. Her X-ray last night looked terrible. There was hardly any lung expansion. You couldn't even see her diaphragm or heart. Today is was 1,000 times better! The lasix and CPAP really opened her up. This ruled out the bacterial pneumonia they said she had again. So the antibiotics they started last night have been stopped again. We will wean her down on CPAP today as she tolerates it. If all goes well she could be back to high flow cannula by tonight. But there is no rush. We don't need another lung collapse like we had. Her blood gas last night looked good. The blood gas is a
test that measures the levels of oxygen and carbon dioxide in the blood to determine how well your lungs are working. I don't think they will do a repeat check unless she gets worse. So we just hurry up and wait for her lungs to heal. They think this all started 8 days ago and usually, for a kid with normal lungs, it can take 7-10 days to feel better. It could take a month or longer for Kai to be back to baseline.

I was so scared last night. I couldn't even post info about the stuff we went over with the doctor. I just felt numb and I'm sure terry and I had a little PTSD from it all. I snuggled in with Kailey and prayed.

Philippians 4:6-7 do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

Today I am less anxious and have a good feeling that we are going to get better, not worse. I'm sure there will be bumps in the road but I think we will get further and further away from intubation.

Thank you you all once again for your prayers. I will update again tonight.

[SkippyJack]

Re: Vandrovec Family

Kailey is in the PICU again. Pretty sick little girl again. Link to the Caring Bridge website is in this thread somewhere. On a mobile device and dont know how to copy and paste.

I've got your back MontanaRabbit - the link is - http://www.caringbridge.org/visit/kaileyvandrovec

[MontanaRabbit]

Re: Vandrovec Family

Kailey is in the PICU again. Pretty sick little girl again. Link to the Caring Bridge website is in this thread somewhere. On a mobile device and dont know how to copy and paste.

[TransAmBison]

Re: Vandrovec Family

Prayers sent. I can't imagine how hard this must be on that family.

[MontanaRabbit]

Re: Vandrovec Family

Another bump in the road for Kailey.

http://www.caringbridge.org/visit/ka...drovec/journal

She is back in the PICU. She could use some prayers from Rabbit Nation.

[RowdyRabbit]

Re: Vandrovec Family

A story from KSFY on the the Vandrovecs.

http://www.ksfy.com/story/22148465/f...-tiny-miracles

[SkippyJack]

Re: Vandrovec Family

TV just tweeted

Terry Vandrovec @TerryVandrovecKailey is back, lighting up our home after 28 days in the hospital. We are eternally grateful to all who helped make that possible. #blessed

[boxerboy]

Re: Vandrovec Family

Hands down the best news on this board the past week...and that's saying a lot!! Congrats to Terry and family. Happy and relieved for you and yours.

So true

[propar80]

Re: Vandrovec Family

Hands down the best news on this board the past week...and that's saying a lot!! Congrats to Terry and family. Happy and relieved for you and yours.

[SkippyJack]

Re: Vandrovec Family

Heading HOME!

Written 1 hour ago
Proverbs 16:9 “A man’s heart plans his way, but the Lord directs his steps.”

All the best plans for caring for the sick can be made but ultimately God's plan will be. I would have thought I would know this by now....yet I get so stressed out when there are setbacks with Kailey.

The upper GI showed that Kailey's nissen is working perfectly and there is NO reflux happening. It also showed that her stomach empties into the intestines rather quickly which is a miracle in itself. After an event like Kailey had, and after her tummy was "shut off" for so long, it usually takes a while for the stomach to begin working properly again. She has been handling the small amounts we have been feeding her very well and that is what we will continue to do as we try to get her back to somewhat regular feedings again.

We are going to be leaving the hospital shortly and will all be together at home tonight! I told Terry how excited I was to be completely overwhelmed with the craziness of our family right now. We found out we will not be getting home nursing now....insurance is unbelievable. Anyone who has struggled with insurance understands my frustration and disappointment in the system.

The doctor is finishing up his discharge notes and I have to pack up....yeah! Thanks for checking in and I will post an update once we are all home.

[SkippyJack]

Re: Vandrovec Family

Written 59 minutes ago
Kailey has been off oxygen for about three hours now. We unhooked her to give her a bath, her first real bath in a tub in three weeks. When we hooked her 02 reader back up, she was satting 95! She was so excited about her bath today...giggling and squealing! I think I was more wet than she was by the end. After bath she needed to rest so she watched some cartoons in bed before PT came to work with her. Some of the simplest things are really hard for Kailey. Putting shapes into a shape sorter is hard because she has such bad tremors. She used to be so good at this skill. She can't stand up or get into sitting position from standing position without support. She will sit up alone pretty well. She will go from sitting up straight to sitting with her hands on the floor alone, but not into a true crawling position. She can't stand up from sitting, she can't squat down to pick up a toy, she can't walk without support. It is like having a baby who is just learning how to be mobile. She cannot be left alone for fear of falling and hurting herself. She struggles to do very simple tasks and her muscles shake so bad after a workout. We walked down the hall today with the therapist and Kailey wanted me to carry her back. Her little legs were just shaking from that small walk. The good news is she wants to get up and moving. I'm told her strength will come back but it is really hard to watch her little body struggle so much. I started doing therapy with her in Minneapolis and we will continue to do it here. Everything I do with her is deliberate, I need to give her every opportunity to get her strength back. We play tug of war with her blanket, I hand her small syringes and see if she can put the plunger part into the syringe. She helps me push her gtube button closed, she pulls tape off her toys, it's non-stop play therapy. Whenever we can we try to get out of bed and play on the floor or walk. It's a balancing act between pushing her just enough but not too much where she tires out and loses any reserve she has built up. She will need increased PT and OT when we get back home. I wondered if she might even need nursing care for a while just until things are a little better for her. We will have to see.

Just as I've been writing, she has fallen into a nice deep sleep and her sats started hanging around 89-90 so I hooked her oxygen back up. It's not uncommon for kids to need the extra 02 when they are asleep. I'm just happy she did so well without it when she was awake.

The pediatrician and pulmonologist who are on today are very pleased with her progress. The plan is still to slowly increase her gtube feedings. Although I am completely capable of taking her home as she is right now, we have the oxygen,nthe feeding pump, the oximiter, nebs, etc, it is nice to be here incase something does not go as it should. If we are able to keep increasing her gtube feeds without issues, we might get to go home in a couple days. The hardest part about being here is knowing I could be doing all of this for her at home AND getting to be a mommy to my other three kids.

Terry stopped by today on his way to the Summit League tournament and was all dressed up in nice clothes and a tie. Kailey wanted him to hold her but her gtube leaks sometimes so he put on a gown. He was asked if he was the doctor!!! It was pretty funny.

I just want to thank you all again for your prayers. The doctor asked me if we had a lot of people praying for us because kids like Kailey usually don't look this good after being as critically sick as she was. He said there was more to her healing than what man could do. It was very refreshing to hear a doctor say that!

1 Corinthians 12:6 There are different kinds of working, but the same God works all of them in all men.

God was working in our doctors and nurses every step along the way. I'm sure of it!

[SkippyJack]

Re: Vandrovec Family

Ty has checked out fine and can go home. I'm so sick about this still but so glad my little mister man is ok.

Kailey is sleeping now and we are a little over an hour away from Sioux Falls. We will not be admitted to the PICU, just the regular hospital.

[RowdyRabbit]

Re: Vandrovec Family

WOW. Needless to say, THOSE shots will be free.

Obviously an innocent mistake, but wow, check, double check, triple check what shots you are supposed to administer.